Cathy Beesey – Founder Stories Connecting Us
On the day I was diagnosed with Wegener Anca Vasculitis (now known as Granulomatosis with Polyangiitis), I asked, ‘What is vasculitis?’ Mostly I have learnt from: my specialists sharing their knowledge and insights, and the Vasculitis Foundation. Also on the day I was diagnosed the person who was to become my main specialist explained, ‘It is a rare condition with one in a hundred thousand people being affected. If you were at the AFL Grand Final, you would be the only one with this condition.’
Vasculitis is a general term that refers to inflammation of the blood vessels. It is used to describe a family of nearly 20 rare diseases, characterized by narrowing, weakening or scarring of the blood vessels, which can restrict blood flow and damage vital organs and tissues. Vasculitis Foundation
Importantly the Vasculitis Foundation conducts patient centred research. I am involved in two research projects led by practitioners in the field with people living with vasculities.
Learn more https://vasculitisfoundation.org/education/general-vasculitis/
I am thrilled to promote and support Vasculitis Awareness Month and invite you, as I have, to read the stories of those living with a form of vasculitis. The stories I have read of others is my personal example of stories connecting us. No two stories are the same. I am proud I have my story published on the Vasculitis Foundation website. I invite you to read our stories and learn more about vasculitis; those: living with it, caring for others living with vasculitis and giving of themselves to build awareness and understanding of this complex set of diseases.
Read here https://vasculitisfoundation.org
Copyright Cathy Beesey, May 2025. All rights reserved; this intellectual property belongs solely to Cathy Beesey.
My most enduring emotion was to feel grateful, the title of my memoir. A new chapter published each week. Here’s the link to all chapters publihsed.
Stories Connecting Us 
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